Friday, August 27, 2010

PURPLE DAY!!

Hello blog followers, 
This upcoming Wednesday, September 1st is my 
LAST CHEMOTHERAPY!! 
In celebration, I will be wearing my purple wig to treatment, with a purple t-shirt, purple vera bradley bag, purple nail polish, and I'm even bringing in purple cookies for my doctor, nurses, and fellow patients.  Needless to say, I'm pretty excited this part of my Hodgkin's journey is coming to an end.  

Sooo.. I'm declaring September 1st 
NATIONAL PURPLE DAY!!  
(...or at least my super-extensive support group's purple day!!)  

What do I ask of you? 
Dress in your finest PURPLE clothing on WEDNESDAY, SEPTEMBER 1ST and TAKE A QUICK SNAPSHOT of yourself or a group of you and your friends sporting your purple and EMAIL ME THE PICTURE.
(messickt@me.com or messickt@duq.edu)
I plan to collect all of the photos of the amazing support that has kept me positive and motivated through my treatments post all of your smiling faces to my blog.

If someone asks whyyy you're decked out in head to toe purple, pleeeease reply, 
"BECAUSE MY FRIEND TERESA KICKED CANCER'S BUTT!!" 

Thanks for all of the continual support. 
I am the luckiest gal in town to have so many amazing people surrounding me and fighting for me.
Yours truly, 
Teresa

Monday, August 23, 2010

GIVE AND GET IS HERE!!!



My dearest Blog Followers,

print your copy of the coupon, 
and shop shop shop August 26-29!! 

You will get 30% OFF your purchases at Gap, Old Navy, and Banana Republic and The Leukemia and Lymphoma Society will get a 5% donation of what you spend! 
It's a win-win.


What better excuse is there to update your fall wardrobe???
Love, Teresa

Sunday, August 22, 2010

11 dowwwwwn, 1 to goooooo!!

Ohhh I am so close to being done, thaaank goodness!!!
Before treatment 11, I had a Dr. Marks appointment to kick off cycle 6.  He checked my lungs, checked for any new lumps/bumps (there were none), discussed follow-up once treatment ends, and talked about side effects that I've been experiencing.  

Follow-up game plan: 
  • September 30th: one month follow-up PET/CT and loads of bloodwork
  • October 4th: one month follow-up Dr. Marks appt for results
  • if all clear, port removal scheduled 
  • PET/CT every 3 months for a year or two, then every 6 months, then every year.. up to 5 years.  If all scans come back clear in the next 5 years, I will no longer need follow-up.
The main side effect we discussed was peripheral neuropathy.  Towards the end of treatment it is common for my fingers and toes to fall asleep and feel tingly.. aka neuropathy.  While it is a concern, treatment plans only change if it is consistent, and mine is intermittent.  Hopefully it'll stay that way and won't get any worse.  

After my Dr. Marks appt we went over to Chemoland.  I ate some Togonuts that I picked up the day before.. my favvvorite donuts from the little stand by The Cheesecake Factory on the Southside.   This treatment took a bit longer because the Hillman is changing a few of their processes-- we were there from 11:30 in the morning until about 6 at night.  But other than that,  treatment 11 was pretty good, compared to the others.  Mom and I were laughing to the point of tears over my "chemo brain" trying to play hangman.  I'm not even going to try to explain, but it was ridiculous.  haha. We had a good time.  After the chemo got going in me, I eventually fell asleep and was out basically though the rest of the treatment and the whole way home.  After being home, the recovery time was a bit better this time around.   I was nauseous, but not as bad as usual.  I was actually able to eat something the night after treatment and the day following.. when usually, I am not able to.  Right now I'm a bit tired, I have intermittent neuropathy, and my mouth is sore.. so I've been spending my days watching movies, the perfect way to recover.  :)
neutrophils are back down to 0.8 as pre chemo 11 blood draw...
 big surpirse!! 


a cold+cancer=no fun//Shadyside ER

Knowing my history of colds, a cold was bound to find me between February and September.  Sure enough, it did.  I woke up Saturday, August 7th with a sore throat that persisted for 3 days.  At first, I had thought the sore throat was an extension of the dry mouth that I commonly suffer in the days following chemo, but when it turned into congestion on day 4, it was evident it was a cold.  Runny nose, stuffy nose, headache, eugh eugh.. you know the symptoms of a cold.  It's been taking me long enough to come around between treatments, let alone with a cold on top of it.  I had called Dr. Marks' PA to see if I should treat a cold with cancer any differently that a cold any other time..  She told me to watch if it settles in my ears, lungs, or turns into a fever, and if so, that would be the scenario to act upon.

Sure enough, Thursday evening I took my tympanic temperature and it was fluctuating between 100.2 and 101.9.  While this may not be a red flag for the non-cancer patient, according to my bloodwork pre-chemo 10, my neutrophils were at 0.8, making me neutropenic and my red flag for immediate medical attention 100.5.  By this time, the Hillman was closed so I called their after-hours line, speaking to the oncologist on-call who said the SAFEST thing to do would to go to Shadyside ER and get admitted for a few days with IV antibiotics.  The lifespan of neutrophils are typically 7-10 days, so knowing that I had chemo on Wednesday, and this was the following Thursday, chances were that my neutrophils were A LOT less that 0.8 at this time.  To have a fever while neutropenic is a VERY serious situation because it is an indicator of infection at a point when my body is not able to fight that infection.  

Preparing myself for the worst-case scenario, I packed my bag with a few changes of clothes, toothbrush, laptop, etc etc etc.  In a matter of minutes, my parents and I were on our way to Shadyside ER.  It was best for me to go to Shadyside versus a hospital closer to home because they were familiar with my port, the neutropenic patient and protocol to protect me from other germs.  They gave me a mask upon arrival, got me in relatively quickly, and put me in a room clear at the end of the hall, away from other patients.  Even though the room was already clean, then washed it down again to be sure I didn't catch anything.  Upon arrival at the hospital, my oral temperature was normal, but for some reason, my tympanic was still high.  Regardless of my temperature at the time, the doctors proceeded with care to be safe.  They took a CBC, a blood culture from my port, a blood culture peripherally from my arm, a urine culture, and a chest x-ray.  After all of this, watching the newest episode of Project Runway, and some waiting, we got great news.   The results of the CBC came back and I was not neutropenic.. my neutrophils were 3.2!!! woooo.  Since I was not neutropenic, I was able to go home and wait for the culture results there.  If I was neutropenic, they would have admitted me for the night and treated me with empiric antibiotic therapy.  The culture results took 72 hours and came back clear.  We had quite a scare, but everything is great now.  Both my tympanic and oral temperatures have been normal and hopefully it'll stay that way for through my last treatment.  :)


SUPER BONE MARROW!!! (it's looking to be that my neutrophil lifespan is 14 days.. they're high on every non-chemo week, and low again at pre-chemo blood draw.)


I'm smiling under my mask. 
(and I'm reaaaally looking like a cancer patient in this picture.. so glad this will all be behind me soon.)

My cold symptoms persisted for a few more days, and by my next treatment, August 18th, I was regaining my energy and feeling good again.  Thank goodness it turned out to be nothing.  Thanks for all of the amazing friends and family who were willing to drop everything to be there for me during the scare.  I'm so lucky to have all of you. :)

Saturday, August 14, 2010

Chemoland, VIP style.

So.. Chemo 10 was ten days ago.. on August 4th.. but I have been sick with a cold between treatments that has really brought me down, therefore, less typing and more sleeping.  I'm starting to feel a bit better now, but it's taking some time for me to recover completely.  I'll post sometime in the near future about the cold experience during cancer, and how it caused me to end up in the Shadyside Hospital ER.  (It was scary at the time but I'm fine, I'm fine.. please nobody panic.)

But before we can post about the cold, we have to first cover chemo 10!!  Chemo 10 just like any other.  Poke, blood tests, premed, chemo, and side effects.  The only difference was VIP treatment.  Ok, ok.. it wasn't that big of a deal, but they're moving around a few departments in the Hillman so now blood transfusions are taking place where Chemoland used to be.. Chemoland got moved to the old Stem-cell area, and Stem-cell got moved downstairs.  So.. upgrade for me!!!  We had flat screen TV's, hardwood floors, love seats, and a lot more space for when Miss. Amanda Suski visited (and brought me a beautiful purple scarf from the new Purple store in Myrtle Beach).  My parents also got to enjoy the huge family room (to be honest I didn't see it-- once they get the IV benadryl in me I am out!! and don't travel far.)   The other perk was a bathroom that was a lot closer, and for a lot less patients.  My room had one other patient, with a curtain divider.  Our room was linked to the neighboring 2-patient room through the bathroom, that the total 4 patients are intended to share.  It was nice.  Instead of having to walk half-asleep across the land, I could just go a few feet to the VIP bathroom.  It was only for patient use, so it was always open when I needed it (another perk!).  Thanks Hillman, for the VIP Chemoland experience. :)
me enjoying VIP treatment, riiiight before the CHEMO treatment actually started


The other thing about this treatment is that my neutrophils upon pre-chemo blood-drawl were down to 0.8.  Oh to have a life of not being neutropenic, I wish I could remember those days.  I was given 7 days of prophylaxis Cipro to cover me from getting anytype of infection while I was down for the count.  My nurse discussed that this commonly happens near the end of treatment, as the chemo is catching up to me and getting the best of me.

(click to make the chart larger!!)


This will all be over before we know it!! Thaaaank goodness! 
10 down, 2 to gooo!!!

ooh, I almost forgot-- GO STEELERS!! First preseason game tonight!!!

Sunday, August 1, 2010

Moving on to double digits!!

That's right my friends, chemo 9 is done done done!! Wednesday will be chemo 10.  Andddd TODAY= one month until my last chemo!! I usually celebrate my birthday for three months, so I really have to think up something special for when this is all over! :)

I called this treatment, "Chemo 9, Jungle Fever." haha all because of the scarf I wore (from Jen-- thanks a ton, dear!) Hey, what can I say, even though you have cancer doesn't mean you can't have some sort of style and humor.  Chemo 9 was similar to the others.. poke, bloodwork, premeds, chemo.. recover, recover, recover.  I'm still hanging on to the very few eyelashes and eyebrows I have.

I also had an appointment with Dr. Marks before chemo.. there was a resident and med student shadowing him that day so we went over all of my history and progress with them during my appointment, explaining every detail that has happened, and why Dr. Marks made the decisions he did along the way.

I also asked if I would be able to go to LKS convention this past weekend (held in Pittsburgh this year) and I WAS CLEARED TO ATTEND!! He said my neutrophils were high enough and I could attend without prophylaxis anyyything.  Of course, I was keeping my distance from crowds, and following the strict neutropenic diet, but it was so good to see all my Tau sisters, Alumni, and the rest of the Lambs from the rest of the world.  I did get tired very quickly and had to skip many events throughout the weekend, but that was expected.  I was so happy I could attend when I did.  Love "ewe" all!! :)



My neutrophils went back down to 1.5.  I knew that 2.5 was too good to be true much longer...
(click on the chart to make it larger!!)

Well kids, Chemo 10 on Wednesday.  Pretty sure I wore my self out this weekend.  I'll be spending the next few days relaxing while emotionally and physically preparing myself for Wednesday's treatment. Take care, and enjoy the Pittsburgh sunshine! :)